Xcout Intel
EURORDIS-Rare Diseases Europe
EURORDIS-Rare Diseases Europe is a non-governmental patient-driven alliance that advocates for people living with rare diseases in Europe.
Subscribe to see EURORDIS-Rare Diseases Europe’s full profile → the full roster, investors in every round, weekly hiring history and every corporate event
EURORDIS-Rare Diseases Europe at a glance
EURORDIS-Rare Diseases Europe is a non-profit & advocacy company headquartered in France. Xcout tracks 10 named people at EURORDIS-Rare Diseases Europe, including Avril Daly (President).
EURORDIS-Rare Diseases Europe leadership
- Avril DalyPresident
- Dorica DanVice President
- Alexandre MéjatBoard Member
- Anna ArellanesováGeneral Secretary
- Graham SlaterDeputy General Secretary
- Johan De GraafTreasurer
4 more named people on record for EURORDIS-Rare Diseases Europe, with roles, board committees and tenure — see the full roster →
EURORDIS-Rare Diseases Europe competitors
A few of EURORDIS-Rare Diseases Europe's closest competitors — see the full list of competitors and alternatives →
The National Organization for Rare Disorders (NORD) is a patient advocacy organization dedicated to identifying, treating, and curing rare disorders through programs of education, advocacy, research, and patient services.
European Digital Rights is an association of civil and human rights organizations defending rights and freedoms in the digital environment across Europe.
The Ehlers-Danlos Society is a global organization dedicated to saving lives and improving the quality of life for individuals affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related connective tissue conditions.
Cure HHT is a patient advocacy organization that supports individuals affected by hereditary hemorrhagic telangiectasia (HHT) and their families. The organization provides educational resources, connects patients with specialized care centers, and supports clinical research aimed at finding a cure for the genetic disorder.
Suomen Migreeniyhdistys is a national patient and advocacy organization that provides information, support, and advocacy for people with migraines and headache disorders.
Get EURORDIS-Rare Diseases Europe's news by email
Funding rounds, acquisitions, new executives, launches and expansions, each with a two-line summary and a link to the source. One short email a day, only when there is news.
Free: up to 5 companies, daily. Subscribers also follow whole sectors and saved filters (M&A in Israel, AI funding…), get instant alerts, in-app notifications and signed webhooks, and open the full profile behind every name. Subscribe →
Share this card
Post the link and the card appears automatically — each network fetches the image itself.
More on EURORDIS-Rare Diseases Europe in Xcout Intel
- 10 named people with titles, LinkedIn and board committees
- The full competitor set, tracking, exports and API access